October, 2021 Because it’s coming up on Thanksgiving, I thought it was high time to list some more things about which I am thankful. Long time readers of this blog will remember my post “gratitude”where I expressed my gratitude for, among other things, my pee bottle. I fear this post will rise to the sameContinue reading “Gratitude Too”
Tag Archives: Motor Neuron Disease
The ALS Care Team Ecosystem 2
October, 2021 When we last left this subject, you were nodding off to my description of the characters that make up Team Waldo, my care ecosystem. You probably completely crashed when I started talking about insurance companies. So you probably missed the part where I promised one more installment about the Team Waldo care ecosystemContinue reading “The ALS Care Team Ecosystem 2”
Upstream
September, 2021 One of the things that keeps me going is geeking out on the new research going on to battle ALS. Even though I’m only able to understand every third word, I can usually make out enough to learn about the really cool advances that are occurring. Every so often something comes along thatContinue reading “Upstream”
Embrace The Suck 