MND – Embrace The Suck

For Fellow pALS

November, 2021 As a fast progressor in ALS Land, I rapidly changed, in the course of less than two years, from a fully able human to a doorstop with a drooling problem This was an emotionally challenging stage for me. There wasn’t a day where I didn’t feel some function had been taken away. InContinue reading “For Fellow pALS”

Gratitude Too

October, 2021 Because it’s coming up on Thanksgiving, I thought it was high time to list some more things about which I am thankful. Long time readers of this blog will remember my post “gratitude”where I expressed my gratitude for, among other things, my pee bottle. I fear this post will rise to the sameContinue reading “Gratitude Too”

The ALS Care Team Ecosystem 2

October, 2021 When we last left this subject, you were nodding off to my description of the characters that make up Team Waldo, my care ecosystem. You probably completely crashed when I started talking about insurance companies. So you probably missed the part where I promised one more installment about the Team Waldo care ecosystemContinue reading “The ALS Care Team Ecosystem 2”

Cannabis

October, 2020 There’s a huge amount of interest in cannabis in the ALS community over its use as a therapy. I started to investigate because I had no prior experience with this particular substance. What’s with all the gagging and snickering out there!? OK maybe I got a contact high at a Grateful Dead show.Continue reading “Cannabis”