August, 2021 I closed off the last blog on this subject by promising a discussion of my feeding tube. If that doesn’t scare you away then I’m simply out of ideas. I’ve discussed my adventures with the feeding tube in my blogs with the words Stanford Health in their titles. The business end of theContinue reading “Tools of the Trade Two”
Tag Archives: Lou Gehrig's Disease
Tools of the Trade
July, 2021 When you’ve got a condition like ALS, your house, if you’re lucky enough to fight this wretched disease from home, becomes the residence of a number of mechanical guests. Like a Lego set of the youngest child of an extended family, these medical mechanical marvels multiply with each malfunction in neuromuscular mobility. I’veContinue reading “Tools of the Trade”
Endless Enigma
June, 2021 ALS has a long list of symptoms. You’ve heard me whine about some of those afflicting me if you have read this blog. Others include muscle cramps, which I have surprisingly avoided, and random outbursts of crying or laughter, the latter of which I have been guilty of for years. When I dutifullyContinue reading “Endless Enigma”
Trike Ride
June, 2021 Since you didn’t ask, I’ve decided to tell you about riding my power assist trike. Two followers that regularly post comments are hard core cyclists so they might be interested. The rest of you might learn something. You might want to read again my earlier blog titled Trike to refresh your memory ofContinue reading “Trike Ride”
Drugs Too
June, 2021 In our last episode, we were discussing cough management through nebulization. A nebulizer is used to turn solutions into gas so they can be inhaled through my respirator. The first solution is a vasodialator to open up the lungs. The second solution is merely saline which thins the secretions so you can hackContinue reading “Drugs Too”
Drugs
June, 2021 Drugs Now that I’ve got your attention, I thought I would run down for you all the chemicals I ingest on at least a daily basis. I’ll spare you the over the counter preparations because they mostly deal with Door Number Two and we don’t want to over share now, do we. IfContinue reading “Drugs”
Vax Number Two
May, 2021 The County of Mega Supply called at the beginning of the month to set up my in home second shot. I love it when government works. St. Laurel promptly chose a mutually convenient time and we were set. The appointed day and time arrive and two strapping members of the County of MegaContinue reading “Vax Number Two”
ALS In Disneyland
May, 2021 A respiratory therapist came over and proved to be an ultimate Disneyland freak. She had the most beautiful and intricate arm ink of Disney art I have ever seen. Good thing I can’t talk or we would still be going on about Club 33 and Hidden Mickeys and those wonderful roast turkey legsContinue reading “ALS In Disneyland”
Advocates
April, 2021 ALS Land is full of organizations and people who fight against this wretched disease. This advocacy takes many forms, from lobbying electeds to helping pALS. As a former attorney I appreciate good advocacy so let me introduce you to this inspired ecosystem. The lead national organization is the ALS Association. I think itContinue reading “Advocates”
I Sound Like Darth Vader
April, 2021 One of the many impacts of ALS is the loss of diaphragm strength and breathing ability. To mitigate this minor inconvenience, mechanical approaches are available to force air into the lungs. One invasive techienique is to affix surgically a tube to your trachea which connects to a breathing machine. This is a permanentContinue reading “I Sound Like Darth Vader”
Embrace The Suck 