Hospice

The ALS Care Team Ecosystem

October, 2021 This Monday, October 11, will be the third anniversary of my diagnosis. I was thinking of throwing a party to celebrate, but because it’s the start of the work week no one would attend. So, instead I decided to blog about the care ecosystem into which you’re thrown once diagnosed with this wretchedContinue reading “The ALS Care Team Ecosystem”

February, 2021 I am entering hospice care and you need to calm down. I’m not dead yet and don’t plan to be for some time thank you very much. So there. Most people associate hospice with end of life care for those in the last stages of cancer. Hospice for us pALS, however, is aContinue reading “Hospice”