Rant

September, 2021 Before I drag you down this week’s harangue, a public service announcement for those that want to go the extra mile or two to battle ALS. On October 23rd the ALS Association Golden West Chapter is holding its annual Walk to Defeat ALS. Because I have a hard time cutting and pasting links,Continue reading “Rant”

How to Speak When You Can’t Part 2

February, 2021 In my last blog on this topic, I described conversing using an eye tracking speech assistance device. I explained some of the techniques I use to engage in conversations. I closed with a promise to discuss responding to gun jumpers, communicating without any assistive device, and the dreaded “or” question. A gun jumperContinue reading “How to Speak When You Can’t Part 2”

How to Speak When You Can’t

January, 2021 One of the tricks you learn when living with ALS is communicating when you can’t talk or move. Although there are tools now available that are both lifesavers and lifelines, there’s no way you can have the intellectual discourse over the socio-economics of wood fired pizza that you had when you could speak.Continue reading “How to Speak When You Can’t”

Eye See What You Are Saying Part 2

July, 2020 Thanks to funding from the Golden West Chapter of the ALS Association and the efforts of Amy Roman, I was able to participate in a remote system evaluation trial allowing me to test drive a number of assistive communication units. Through the trial I chose a suitable eye tracker device. I can nowContinue reading “Eye See What You Are Saying Part 2”

Eye See What You Are Saying

May, 2020 ALS has been described as being stuck in the middle seat on a never ending flight. You are unable to move or speak, and God help you if you need to use the bathroom. The current loss de jeur to the bulbar region motor neurons means I can’t talk. This no talking thingContinue reading “Eye See What You Are Saying”