November, 2021 Someone in ALS Land named November Family Caregivers Month. This pushes me to blog, and post a couple of days early, about a subject I should have blogged about earlier, and that is the wonderful clutch of the family caregivers of Team Waldo. They have helped me so much in my ALS journeyContinue reading “Family Caregivers”
Tag Archives: ALS
Gratitude Too
October, 2021 Because it’s coming up on Thanksgiving, I thought it was high time to list some more things about which I am thankful. Long time readers of this blog will remember my post “gratitude”where I expressed my gratitude for, among other things, my pee bottle. I fear this post will rise to the sameContinue reading “Gratitude Too”
Booger
October, 2021 This one’s kind of gross, so if you have any aversion to dried snot projectiles, you should stop reading now. For those of you without such an aversion, you ought to be ashamed of yourselves. On the other hand, who am I to judge. I write this stuff. One of the worst insultsContinue reading “Booger”
The ALS Care Team Ecosystem 2
October, 2021 When we last left this subject, you were nodding off to my description of the characters that make up Team Waldo, my care ecosystem. You probably completely crashed when I started talking about insurance companies. So you probably missed the part where I promised one more installment about the Team Waldo care ecosystemContinue reading “The ALS Care Team Ecosystem 2”
Tools of the Trade Two
August, 2021 I closed off the last blog on this subject by promising a discussion of my feeding tube. If that doesn’t scare you away then I’m simply out of ideas. I’ve discussed my adventures with the feeding tube in my blogs with the words Stanford Health in their titles. The business end of theContinue reading “Tools of the Trade Two”
Trike Ride
June, 2021 Since you didn’t ask, I’ve decided to tell you about riding my power assist trike. Two followers that regularly post comments are hard core cyclists so they might be interested. The rest of you might learn something. You might want to read again my earlier blog titled Trike to refresh your memory ofContinue reading “Trike Ride”
Trike
May, 2021 When I was a wee lad I had a bright red tricycle that took me to infinity and beyond. I think it may have even had tassels attached to the handgrips but don’t hold me to that. As my balance improved successive sets of two wheeled self-powered rockets became my infinity machines. SoonContinue reading “Trike”
Drugs
June, 2021 Drugs Now that I’ve got your attention, I thought I would run down for you all the chemicals I ingest on at least a daily basis. I’ll spare you the over the counter preparations because they mostly deal with Door Number Two and we don’t want to over share now, do we. IfContinue reading “Drugs”
ALS in the Time of Covid
April, 2021 Attempting to live with a deadly illness during a deadly pandemic brings a unique set of inconveniences. Although sheltering in place is not impossible for the homebound like me, there are other impacts that have increased the suck. A major Impact was losing my caregiver. A few months ago my long time caregiverContinue reading “ALS in the Time of Covid”
I Sound Like Darth Vader
April, 2021 One of the many impacts of ALS is the loss of diaphragm strength and breathing ability. To mitigate this minor inconvenience, mechanical approaches are available to force air into the lungs. One invasive techienique is to affix surgically a tube to your trachea which connects to a breathing machine. This is a permanentContinue reading “I Sound Like Darth Vader”
Embrace The Suck 