May, 2021 Happy Anniversary St. Laurel, number 33 by my count. How you have put up with my countless deficiencies for this many years, plus nine and a half more, is beyond me. One of these days you will finally come to your senses. Until then I’m a happy guy. We’ve been on so manyContinue reading “Anniversary”
Category Archives: Uncategorized
ALS In Disneyland
May, 2021 A respiratory therapist came over and proved to be an ultimate Disneyland freak. She had the most beautiful and intricate arm ink of Disney art I have ever seen. Good thing I can’t talk or we would still be going on about Club 33 and Hidden Mickeys and those wonderful roast turkey legsContinue reading “ALS In Disneyland”
Poem
April, 2021 Poetry is a thing now, which is really cool. Not to be left behind I’ve incorporated the existential fluidity of the ALS life into this literary art form. In that spirit I hope to make you feel some of the substance which now dominates my life. I call my poem: Snot I knowContinue reading “Poem”
Advocates
April, 2021 ALS Land is full of organizations and people who fight against this wretched disease. This advocacy takes many forms, from lobbying electeds to helping pALS. As a former attorney I appreciate good advocacy so let me introduce you to this inspired ecosystem. The lead national organization is the ALS Association. I think itContinue reading “Advocates”
ALS in the Time of Covid
April, 2021 Attempting to live with a deadly illness during a deadly pandemic brings a unique set of inconveniences. Although sheltering in place is not impossible for the homebound like me, there are other impacts that have increased the suck. A major Impact was losing my caregiver. A few months ago my long time caregiverContinue reading “ALS in the Time of Covid”
I Sound Like Darth Vader
April, 2021 One of the many impacts of ALS is the loss of diaphragm strength and breathing ability. To mitigate this minor inconvenience, mechanical approaches are available to force air into the lungs. One invasive techienique is to affix surgically a tube to your trachea which connects to a breathing machine. This is a permanentContinue reading “I Sound Like Darth Vader”
Legally Blue Part Two
March, 2021 There were a number of “firsts” for me in playing with Legally Blue. It was the first band in which I played a B3 organ. It was the first band in which I played that had its own truck. And it was the first band in which I played that built cohesion amongContinue reading “Legally Blue Part Two”
Legally Blue
March, 2021 Those that know me know I have an almost insufferable passion for music, especially live jazz but also blues, classical, and rock. I’ve been playing keyboard instruments since I was 12, when I broke my clarinet after a junior high school holiday concert and needed to learn how to play the family ConnContinue reading “Legally Blue”
The Hospice Swarm
March, 2021 When word first got out that I was going under hospice care, the friends and family game of telephone went off like a social media amplification algorithm. St Laurel was soon reading of thoughts and prayers from well-meaning friends, leaving her with a WTF look until she put the pieces together. This promptedContinue reading “The Hospice Swarm”
Hawgs Video
March, 2021 For those of you keen on procrastination, Kevin uploaded his video of those powder chasing Hawgs at Snowmass and Vail. We’re joined in Snowmass by Bruce’s long suffering wife, Lynn. The video, which can be found at https://youtu.be/gTDT0rmaubg is a complete waste of your time. It does prove, however, that I can playContinue reading “Hawgs Video”
Embrace The Suck 