July, 2021 When you’ve got a condition like ALS, your house, if you’re lucky enough to fight this wretched disease from home, becomes the residence of a number of mechanical guests. Like a Lego set of the youngest child of an extended family, these medical mechanical marvels multiply with each malfunction in neuromuscular mobility. I’veContinue reading “Tools of the Trade”
Category Archives: Uncategorized
SummerFest on Wheels
July, 2021 The last SummerFest I attended was 2019. If you think I’m obsessive about the Fest, then you’re right. Because ALS keeps me from going, writing about it is about as close as I’m going to get to actually being there, except for the live stream. Now that you’re weeping for me, you’ll readContinue reading “SummerFest on Wheels”
Endless Enigma
June, 2021 ALS has a long list of symptoms. You’ve heard me whine about some of those afflicting me if you have read this blog. Others include muscle cramps, which I have surprisingly avoided, and random outbursts of crying or laughter, the latter of which I have been guilty of for years. When I dutifullyContinue reading “Endless Enigma”
Trike Ride
June, 2021 Since you didn’t ask, I’ve decided to tell you about riding my power assist trike. Two followers that regularly post comments are hard core cyclists so they might be interested. The rest of you might learn something. You might want to read again my earlier blog titled Trike to refresh your memory ofContinue reading “Trike Ride”
Trike
May, 2021 When I was a wee lad I had a bright red tricycle that took me to infinity and beyond. I think it may have even had tassels attached to the handgrips but don’t hold me to that. As my balance improved successive sets of two wheeled self-powered rockets became my infinity machines. SoonContinue reading “Trike”
Remembering the San Jose Jazz Festival
Painting by Jan Prevetti June, 2021 As concert venues start to reopen, I was delighted to read in my inbox that SummerFest, formerly known as the San Jose Jazz Festival, is on at its usual dates on the second weekend in August. This celebration of jazz in beautiful downtown San Jose has always been aContinue reading “Remembering the San Jose Jazz Festival”
Drugs Too
June, 2021 In our last episode, we were discussing cough management through nebulization. A nebulizer is used to turn solutions into gas so they can be inhaled through my respirator. The first solution is a vasodialator to open up the lungs. The second solution is merely saline which thins the secretions so you can hackContinue reading “Drugs Too”
Drugs
June, 2021 Drugs Now that I’ve got your attention, I thought I would run down for you all the chemicals I ingest on at least a daily basis. I’ll spare you the over the counter preparations because they mostly deal with Door Number Two and we don’t want to over share now, do we. IfContinue reading “Drugs”
Gathering
May, 2021 Loyal readers will recall that St. Laurel and I recently celebrated our 33rd wedding anniversary. To help us celebrate my sis and bro in law fly up, mom in law hangs out and our daughter and son in law come down with Tonka the wonder dog. Sis in law Lynnie makes an incredibleContinue reading “Gathering”
Vax Number Two
May, 2021 The County of Mega Supply called at the beginning of the month to set up my in home second shot. I love it when government works. St. Laurel promptly chose a mutually convenient time and we were set. The appointed day and time arrive and two strapping members of the County of MegaContinue reading “Vax Number Two”
Embrace The Suck 