Bob Hawn passed peacefully after his heroic embrace of ALS (amyotrophic lateral sclerosis or Lou Gehrig’s Disease). He lived a full, energetic, and loving life, delighting all he met with his bright blue eyes, easy laughter, and quick wit. He is deeply missed by family and friends. Born in the Bay Area, Bob was firmlyContinue reading “A Life Well Lived (1958-2021)”
Category Archives: Uncategorized
Holiday Letter
December, 2021Holiday Letter I love getting holiday letters. It’s like social media but on paper and without the data mining. Neither I nor St. Laurel have ever written one, so what the heck. No time like the present to give it a try. January started with the loss of my caregiver due to an emergencyContinue reading “Holiday Letter”
For Fellow pALS
November, 2021 As a fast progressor in ALS Land, I rapidly changed, in the course of less than two years, from a fully able human to a doorstop with a drooling problem This was an emotionally challenging stage for me. There wasn’t a day where I didn’t feel some function had been taken away. InContinue reading “For Fellow pALS”
Family Caregivers
November, 2021 Someone in ALS Land named November Family Caregivers Month. This pushes me to blog, and post a couple of days early, about a subject I should have blogged about earlier, and that is the wonderful clutch of the family caregivers of Team Waldo. They have helped me so much in my ALS journeyContinue reading “Family Caregivers”
Turkey Ride
November, 2021 The Sierra Azul mountains begin about a mile or so from the house. Named for the blueish tint they show, the range is covered with chapperal and the occasional oak woodland. The Midpennsula Open Space District had the good sense to buy a good chunk of the range to form the Sierra AzulContinue reading “Turkey Ride”
Gratitude Too
October, 2021 Because it’s coming up on Thanksgiving, I thought it was high time to list some more things about which I am thankful. Long time readers of this blog will remember my post “gratitude”where I expressed my gratitude for, among other things, my pee bottle. I fear this post will rise to the sameContinue reading “Gratitude Too”
Booger
October, 2021 This one’s kind of gross, so if you have any aversion to dried snot projectiles, you should stop reading now. For those of you without such an aversion, you ought to be ashamed of yourselves. On the other hand, who am I to judge. I write this stuff. One of the worst insultsContinue reading “Booger”
Silicon Valley Stories
October, 2021 After I blew the lid off my night time freeway frolics and doughnut feasts, my friend Cristina suggested more blogs about what this area was like before it became Silicon Valley. To give you a break from ALS Land, I’ve decided that I would take her up on it. Before Apple, there wereContinue reading “Silicon Valley Stories”
The ALS Care Team Ecosystem 2
October, 2021 When we last left this subject, you were nodding off to my description of the characters that make up Team Waldo, my care ecosystem. You probably completely crashed when I started talking about insurance companies. So you probably missed the part where I promised one more installment about the Team Waldo care ecosystemContinue reading “The ALS Care Team Ecosystem 2”
Rant
September, 2021 Before I drag you down this week’s harangue, a public service announcement for those that want to go the extra mile or two to battle ALS. On October 23rd the ALS Association Golden West Chapter is holding its annual Walk to Defeat ALS. Because I have a hard time cutting and pasting links,Continue reading “Rant”
Embrace The Suck 